Studies, Websites, Organizations

Websites for Caregivers  The website of the Aging Life Care Association (formerly the National Association of Professional Geriatric Care Managers).  The site includes information to assist caregivers in your role, as well as locate a care manager in your area.  A dignified and caring approach presented by David Troxell and Virginia Bell.  An excellent resource for family and caregivers alike. A site devoted to organizing the caregivers and keeping it all straight. Create a free of charge, private, web-based community to organize family, friends, neighbors, and colleagues – a family’s ‘circles of community’ — during times of need. Easily coordinate activities and manage volunteers with the intuitive group calendar. The site for the national organization of the Alzheimers Association. Full of great information and up to date research. Also has access to resources for caregivers, including the Safe Return Program. The BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer’s disease, macular degeneration, and glaucoma. Mesothelioma is a rare cancer and very few treat it. This organization specializes in connecting patients with doctors and treatment options that are best suited for them. Their services and resources are 100% free to patients and family members.  Every year nearly 2,000-3,000 individuals die due to mesothelioma, with symptoms not appearing until 20-40 years after exposure to asbestos. The Association for Frontotemporal Degeneration – the most common dementia for those under 60. a website by the Assisted LIving Research Institute, this link is specifically to the page for assisted living benefits for veterans.


National Caregiving Studies

Best Practices in Workplace EldercareThe National Alliance for Caregiving and ReACT, March 2012.

Caregiving in the U.S. 2015.  National Alliance for Caregiving and American Association of Retired Persons, 2015.